Dear Whom it May Concern,
I want to express my deepest gratitude for your donation for Lily’s Kidwalk. I’m not sure if you know how much this means to us, so I want to tell you what a difference you have made in a our little girl’s life. Lily just turned three years old and is unable to walk, talk, or feed herself. She has tuberous sclerosis, a rare disease that can cause tumors to grow in any of your organs. Because of this she has over 13 brain tumors, and as of late, we learned that one of those tumors is growing and becoming life threatening. Fortunately, there is a new drug that she has just started that is shrinking those tumors, and we are very hopeful that this will help not only shrink the dangerous brain tumor, but help with her seizures (she has 1-4 every day) and cognition (she is like a 7-10 month old) as well. Lily is a medically fragile child and also has many other medical issues; however, we know that Lily can understand us and that there is hope for her to learn and have a great quality of life.
But these are not the only issues at hand. As Lily grows, she must learn to put weight on her legs or her hips and bones will suffer. Her feet will stay like a pudgy baby and it will make it even more difficult for her to walk. Her development is behind, but her body is growing anyway. With the Kidwalk, Lily spends a lot of time standing and strengthening her feet and legs. We are also able to teach her to put one leg in front of the other. She tires quickly, so the Kidwalk has a bicycle seat that allows her to sit and take breaks on her own so that she has fun in it and it’s not just hard physical therapy. In just the short amount of time since you’ve helped us with this amazing piece of equipment, Lily’s feet are becoming more flat and strong. Her legs have gained so much strength that she’s able to stand for much longer, she’s pulling into a kneel position, and even attempting to crawl. All of these advancements are because of the Kidwalk, and more importantly because of you.
This disease is scary and can sometimes make us feel so alone with the frightening things we deal with. But your kindness shined a light on our daughter and our family. That someone cares too, that we are not alone, and that we have angels around us. I wish that there were better words to express the joy and hope that you have given us, and the feeling we get when we see Lily doing better because of your selflessness and empathy, but there are no words that enter that deeply into our hearts. I will be forever grateful for your kindness and may God bless you at every turn.
All my humble thanks,
William & Heather & Lilliana Grace Brewster
